We decided to get some rest and missed the 9am feeding, instead slept until 8, I took a run and we had a slow morning at home.
Ashton is doing well. Last night they had to move his iv to his head, as he keeps pulling or biting on IV in his hands (one has failed in each hand). I hate looking at the IV in his head, and am grateful the put it in while I was not in the building.
He still has the occasional apnea which in turn decreases his heart-rate. He seems to be catching himelf and remembers that breathing feels good and should be continued. I keep telling him that in scuba diving the first rule is to never stop breathing and the same goes for life in and out of the ICU - never stop breathing. Apparently caffeine helps you remember to breathe (have you ever seen a non-breathing barista @ starbucks) they may add caffeine to help if it keeps up today. Hopefully not; caffeine started means a minimum of 2 weeks here. He has had 4 total episodes since 7am today, less than the 15 he had in the previous 24 hours. A rule for getting out of here is 7 days without having A's&B's
Eating is still good. 10ml every 3 hours. The NP says they will increase it today. So far production exceeds consumption and we have inventory.
They still have him on an iv that has TPN, a nutrition product as well as liquids that help with bilirubin.
Bilirubin level this morning are unchanged from yesterday so he remains under the phototherapy lights to work on that situation.
The thought is that with the IV liquids, the lights combined with eating more should bring those levels down.
When he has normal bilirubin and if he continues to allow increased feeding then he can move from incubator to crib, but he needs to be off the lights and IV first.
Amie was able to hold him and 'practice' feed for a while at the noon feeding which is really cool. He is very comfortable in Amie's arms.
We are very happy that to date there has been no bad news or issues and that all problems Ashton is going through are minor and 'normal'. We can only hope that it continues this way. There are so many kids here smaller and sicker than Ashton; we are tremendously lucky.
We will come back tonight for his 9pm feeding and will try to update then.
Enjoy your holiday Monday.
Zack Clark
Mobile-801.244.4849
Subscribe to:
Post Comments (Atom)
Posts
We are so glad to hear that things are looking good. I totally understand the whole IV in the head thing. I walked in to the NICU and saw it in Madison's head and almost passed out. Hang in there! We miss you guys and hope to see you soon! Give Ashton a hug from us!
ReplyDelete